Rare Gems

rare¹

rer/

adjective

1. (of an event, situation, or condition) not occurring very often.

   synonyms:

   infrequent, scarce, sparse, few and far between,  like gold dust

   • (of a thing) not found in large numbers and consequently of interest or value.

     synonyms:

     unusual, uncommon, unfamiliar, atypical, singular

Today is National Rare Disease Day! 

When the people who designated this day named it, I think they probably meant rare in the first sense - not occurring often. But I'd love it if we could think of the children represented by this label and remember that there is another definition of the word rare: 

rare¹

rer/

adjective

1. • unusually good or remarkable.

     synonyms:

     exceptional, outstanding, unparalleled, peerless, matchless, unique, unrivaled, inimitable, beyond compare, without equal, second to none, unsurpassed;

I've not met these sweet, precious children (each of whom was born with a rare syndrome or other unusual quality), but I know that they are all remarkable.  

They are fearfully and wonderfully made - rare 'diseases' and all. 

These beautiful ones are, indeed, rare! Rare gems of great worth. 

And today, I'd like to introduce you to a few of those gems: 

There's Zachary, 

Leena, 

Harding, 

Garrett, 

Ollie, 

Emerson,

Nadine, 

Landon, 

Esme, 

Amelia, 

Jared,

Steven,

Jenni, 

Elle,

 

Aven,

Alisha,

Steven,

Maverick,

Callie,

Ollie & Ozzie

Each of these children was born with what society labels as a rare "disease". However, I'm not going to add the names of those conditions here, because I want you to see these faces as the children that they are, not as a syndrome. You can get more information on each of them if you click on their name, but first, remember that these are real kids with favorite colors, favorite foods and a wish for a family. 

If you feel that any of these rare gems might be the missing face in your family picture, email us at: theworldwillchangeblog@gmail.com 

I would be more than happy to connect you with people who have experience with these conditions, and who can help you with the first steps of the journey to your child!

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